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Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services

Bigby, C., Whiteside, M., Douglas, J.,

Academic Literature

2017

Supporting people with intellectual disability to make decisions is an important issue for policy implementation yet there is little evidence about the practice of providing support. This study aimed to understand the experiences of family members and disability support workers in providing support to adults with intellectual disability in Victoria, Australia. Twenty-three people drawn from these two groups participated in individual or focus group interviews. Three major themes emerged from inductive thematic analysis: their ideas about decision support, approaches to support, and challenges they faced. Overall these revolved around juggling rights, practicalities, and risks. This study identified some of the challenges and practical strategies for providing decision making support that can be used to inform practice and capacity building resources for supporters.

Publication information

Journal/Publication : Journal of Intellectual and Developmental Disabilities

Location : Australasia

Domain/s: Community and civic participation

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