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Caregivers' support needs and factors promoting resiliency after brain injury

B. Kitter, R. Sharman,

Academic Literature


AIM: This article explores the challenges, support needs and coping strategies of caregivers of people with an acquired brain injury (ABI).;METHOD: Semi-structured interviews were conducted with caregivers (n=20) to explore their support services received, access barriers, utility of services, needed supports, coping strategies and factors promoting life satisfaction. The team recorded, transcribed verbatim and inductively analysed all interviews.;RESULTS: Through thematic data analysis, three central themes were revealed: (a) barriers impeding quality-of-life, (b) support needed to improve quality-of-life and (c) factors enabling quality-of-life. All perspectives from the participants involved are synthesized to provide a rich depiction of caregivers' support needs and coping strategies.;CONCLUSIONS: Two specific findings of interest include a negative association between severity of brain injury and caregiver's desire to direct treatment, as well as a distinct service gap in assistance for caregivers who are caring for someone with violent/offending behaviours. This study recommends short- and long-term changes, given Australia's upcoming National Disability Insurance Scheme, to increase caregiver quality-of-life, which will ultimately affect the rehabilitation outcomes of persons with ABI.

Publication information

Journal/Publication : Brain Injury

Domain/s: Economic participation

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