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Review: A systematic review of quality of life measures for people with intellectual disabilities and challenging behaviours

Townsend‐White, C., Pham, A. N. T., Vassos, M. V.,

Academic Literature

2012

The aim of this study was to conduct a systematic review of available quality of life (QOL) measures for people with intellectual disability (ID) to pinpoint psychometrically sound measures that can be routinely used for service evaluation. A systematic search of the disability literature published between 1980 and 2008 was conducted. Six of the instruments examined were deemed to be psychometrically sound on the available information. No instruments were found that specifically assess QOL for people with ID who exhibit challenging behaviour. Most of the instruments assess QOL from a subjective perspective, use a questionnaire format and measure only some (not all) of the eight theoretically accepted domains of QOL. More instruments that measure QOL need to be developed and rigorously validated.

Publication information

Journal/Publication : Journal of Intellectual Disability Research

Location : Australasia

Domain/s: Health and wellbeing, Sector development and sustainability

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