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“I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability

Bigby, Christine, Knox, Marie,

Academic Literature

2009

This study explored the everyday lives of older people with intellectual disability in Victoria and Queensland, examining their experiences of using disability services and the ways in which services responded to their ageing. The study aimed to inform practice and service development for older people with intellectual disability. The findings suggest that services facilitate important social relationships with other service users and staff. Most older people had a sense of belonging and led busy but directionless lives in two disconnected worlds. Their lives were subject to significant external present-focused control. Yet, despite this, neither services nor family members took responsibility for ensuring their sense of continuity or supporting the development of plans about their future. The experiences described suggest an urgent need for, but significant challenges in the implementation of, holistic indivdualised planning similar to the UK concept of person-centred planning.

Publication information

Journal/Publication : Australian Social Work

Location : International

Domain/s: Social relationships

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