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"Lost in the crowd": issues confronting adults with intellectual disabilities and their family members

Chenoweth, L., Newman, M., Burke, C.,

Academic Literature

2001

As adults with an intellectual disability and their families begin to age there are many adjustments to make, such as separation from familiar surroundings of the family home and trusted social networks. Because community-based services are not always portable, intellectually disabled adults may need to be placed in an aged care facility when their parents become frail, ill or die. Families often consider this form of accommodation as a last resort and, when this is the only option available to them, they are left in a state of anguish about their relative's future. This paper reports on the process and outcomes of a small qualitative study, the aims of which were to identify the issues for people facing this dilemma, to determine what services might be more suitable to support adults with an intellectual disability and to support this group of people to act on their difficulties in an empowering and collaborative manner.

Publication information

Journal/Publication : Geriaction

Location : Australasia

Domain/s: Health and wellbeing, Social relationships

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