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Moving towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and Their Families "Just Getting along with Their Lives Together"

Knox, Marie, Bigby, Christine,

Academic Literature

2007

This article seeks to explore meanings of family care held by seven families that include a middle‐aged adult with intellectually disability. Participants described care as simply getting on with their lives, as “Family Business”, characterised by the conduct of well‐understood tasks and routines. As such, all, including the person with intellectual disability, performed roles critical to the well‐being of each other and the family as a whole. Suggested is the importance of services adopting a relational approach to understanding family care and supporting future planning for middle‐aged people with intellectual disabilities.

Publication information

Journal/Publication : International Journal of Disability, Development and Education

Location : Australasia

Domain/s: Social relationships

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