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Social relationships

Eliciting family concerns and priorities through the Routines-based Interview

Background: Research has demonstrated that having an understanding of families’ everyday routines is important when planning interventions, yet the nature of the information revealed by families...

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

This study explores the status of end-of-life care and dying of people with intellectual disability. End-of-life care entails complex interaction between the dying person and carers, other clients, health service providers and family members.

Evaluating Diagnostic tools in the Assessment of Autism and Parental Experiences of the Assessment and Diagnostic Process

This study examined the validity of the Gilliam Autism Rating Scale (GARS), in a sample of 26 children presenting for assessment with and without concerns about autism disorder. The study also surveyed parent experiences of the assessment and diagnostic process.

Everyday practices of exclusion/inclusion: women who have an intellectual disability speaking for themselves?

In this study, women with an intellectual disability spoke about their issues. The women reported that the women experienced practices of social and emotional exclusion, and inclusion, in their everyday lives.

Examples of individual supported living for adults with intellectual disability

BACKGROUND: This article provides a qualitative account of four models of support for adults with intellectual disability in individual supported living (ISL) arrangements.;MATERIALS AND METHODS:...

Experience of gastrostomy using a quality care framework: the example of rett syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of...

Experiences of supporting people with Down syndrome and Alzheimer's disease in aged care and family environments

The aim of this study was to gain a greater understanding of these processes by exploring the experiences of families and carers in supporting people with Down syndrome and Alzheimer's disease who had lived most or all of their lives with family.

Family support needs following acquired brain injury across metropolitan and regional/remote South Australia

Aims: To identify and compare, family support needs following an acquired brain injury (ABI) in metropolitan and regional/remote areas in order to inform the development of a state-wide family...

Flexibility of Programme Delivery in Providing Effective Family-centred Intervention for Remote Families

This study investigated beliefs and values around family-centred practice through examining professional beliefs about children, parents and how they could work with families. It also investigated how the mode of programme delivery might be associated with outcomes for families.

Gender differences in the perceptions of psychosocial experiences reported by persons with disabilities

The objective of this study was to describe the subjective experience of living with disability.

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Research to Action Guides

  • A Guide for disability practitioners, schools, employers and young people looking to make the transition from school to employment in Australia....
  • The Culturally Proficient Service Delivery Research to Action Guide has been developed to assist in the provision of accessible, appropriate and effective disab...