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Social relationships

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

This study explores the status of end-of-life care and dying of people with intellectual disability. End-of-life care entails complex interaction between the dying person and carers, other clients, health service providers and family members.

Evaluation of the internal construct validity of the Personal Care Participation Assessment and Resource Tool (PC-PART) using Rasch analysis

Background: The Personal Care Participation Assessment and Resource Tool (PC-PART) is a 43-item, clinician-administered assessment, designed to identify patients' unmet needs (participation...

Experience of gastrostomy using a quality care framework: the example of rett syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of...

Experiences of supporting people with Down syndrome and Alzheimer's disease in aged care and family environments

The aim of this study was to gain a greater understanding of these processes by exploring the experiences of families and carers in supporting people with Down syndrome and Alzheimer's disease who had lived most or all of their lives with family.

Families with a young child with a disability

This article examines the characteristics of families with at least one young child with a disability and the effect the caring role has on relationships.

Family caring of older adults with intellectual disability and coping according to loci of responsibility

BACKGROUND: A complex interplay of factors is evident in the response of family caring for older adults with intellectual disability (ID). The aim of this study was to explore the interaction of...

Family support needs following acquired brain injury across metropolitan and regional/remote South Australia

Aims: To identify and compare, family support needs following an acquired brain injury (ABI) in metropolitan and regional/remote areas in order to inform the development of a state-wide family...

Gatekeepers to home and community care services: the link between client characteristics and source of referral

The aim of this study was to identify characteristics associated with the likelihood of a client receiving a referral to the Home and Community Care (HACC) program from various sources. Data were...

Gatekeepers to home and community care services: the link between client characteristics and source of referral.

This study sought to identify factors that determined the likelihood of being referred to the Home and Community Care (HACC) program. Women and clients cared for by parents were less likely to be referred by health workers than non-health workers.

Gender differences in the perceptions of psychosocial experiences reported by persons with disabilities

The objective of this study was to describe the subjective experience of living with disability.

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Research to Action Guides

  • A Guide for disability practitioners, schools, employers and young people looking to make the transition from school to employment in Australia....
  • The Culturally Proficient Service Delivery Research to Action Guide has been developed to assist in the provision of accessible, appropriate and effective disab...