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Social relationships

Eliciting family concerns and priorities through the Routines-based Interview

Background: Research has demonstrated that having an understanding of families’ everyday routines is important when planning interventions, yet the nature of the information revealed by families...

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

This study explores the status of end-of-life care and dying of people with intellectual disability. End-of-life care entails complex interaction between the dying person and carers, other clients, health service providers and family members.

Evaluation of the internal construct validity of the Personal Care Participation Assessment and Resource Tool (PC-PART) using Rasch analysis

Background: The Personal Care Participation Assessment and Resource Tool (PC-PART) is a 43-item, clinician-administered assessment, designed to identify patients' unmet needs (participation...

Everyday practices of exclusion/inclusion: women who have an intellectual disability speaking for themselves?

In this study, women with an intellectual disability spoke about their issues. The women reported that the women experienced practices of social and emotional exclusion, and inclusion, in their everyday lives.

Experience of gastrostomy using a quality care framework: the example of rett syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of...

Experiences of family caregiving among older Australian women

This article seeks to explore the effects of family caregiving on physical and emotional wellbeing among a cohort of Australian women aged 70 to 75 years.

Experiences of supporting people with Down syndrome and Alzheimer's disease in aged care and family environments

The aim of this study was to gain a greater understanding of these processes by exploring the experiences of families and carers in supporting people with Down syndrome and Alzheimer's disease who had lived most or all of their lives with family.

Families with a child with disability : joblessness, financial hardship and social support

Families with a child with a disability experience several barriers. This chapter examines the experiences of these families regarding joblessness, financial hardship and accessing social support, using data from 'Growing Up in Australia, the Longitudinal Study of Australian Children' (LSAC).

Families with a young child with a disability

This article examines the characteristics of families with at least one young child with a disability and the effect the caring role has on relationships.

Gender differences in the perceptions of psychosocial experiences reported by persons with disabilities

The objective of this study was to describe the subjective experience of living with disability.

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Research to Action Guides

  • A Guide for disability practitioners, schools, employers and young people looking to make the transition from school to employment in Australia....
  • The Culturally Proficient Service Delivery Research to Action Guide has been developed to assist in the provision of accessible, appropriate and effective disab...