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Social relationships

Moving towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and Their Families "Just Getting along with Their Lives Together"

This article seeks to explore meanings of family care held by seven families that include a middle‐aged adult with intellectually disability.

My home, your workplace: people with physical disability negotiate their sexual health without crossing professional boundaries

This paper aims to describe research that examined the views of people with physical disability, living in Australia, of their sexual well‐being needs from their own perspective.

National Aboriginal and Torres Strait Islander Social Survey, 2002

The 2002 National Aboriginal and Torres Strait Islander Social Survey is a multi-dimensional social survey of Australia's Indigenous population designed to enable analysis of the interrelationship of social circumstances and outcomes..

Newborn bloodspot screening policy framework for Australia

Background The aim of newborn bloodspot screening (NBS) is to identify rare genetic and non-genetic conditions in children soon after birth in order to commence therapies that prevent the...

Online social participation, social capital and literacy of adolescents with hearing loss: A pilot study

The internet and social media have fast become an everyday aspect of adolescents’ lives. Online participation may increase social capital and be particularly beneficial for individuals who are...

Parents' Experiences with Genetic Counseling After the Birth of a Baby with a Genetic Disorder: An Exploratory Study

This article presents findings from semi-structured interviews with parents of four children born with cystic fibrosis (CF) and ten with Down's syndrome (DS) to ascertain reasons for using, or not using, genetic counseling services in the state of Victoria, Australia.

Parents’ expectations, awareness, and experiences of accessing evidence-based speech-language pathology services for their children with autism

The aim of this study was to explore the expectations, awareness, and experiences of parents in their efforts to access evidence-based speech-language pathology (SLP) services for their children with autism spectrum disorders (ASD).

Patterns of depressive symptoms and social relating behaviors differ over time from other behavioral domains for young people with Down syndrome

People with intellectual disabilities are at a higher risk for experiencing behavioral, emotional, and psychiatric problems in comparison with the general population. People with Down syndrome...

People with developmental disabilities teaching medical students–does it make a difference?

This paper assesses changes in attitudes of fourth year undergraduate medical students towards interacting with people with developmental disabilities. After an intervention, students' attitudes became more positive.

Physical and mental health of mothers caring for a child with Rett syndrome

This article seeks to explore the physical and mental health of mothers who care for a child with Retts Syndrome.

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Research to Action Guides

  • A Guide for disability practitioners, schools, employers and young people looking to make the transition from school to employment in Australia....
  • The Culturally Proficient Service Delivery Research to Action Guide has been developed to assist in the provision of accessible, appropriate and effective disab...